National Register for congenital uro rectal Malformations

The principal aim of the project is to establish the basis for a national register for congenital urorectal malformations. The project aims to include affected newborns as well as affected of older age. No personal data will be stored, but only standardized data regarding phenotype, diagnosis, associated diseases, prognosis, treatment and achieved outcome. Due to transinstitutional ascertainment of patients appropriate sample sizes will be achieved.

The central database is a core project within CURE-Net for exploring the aetiology and course of anorectal malformation (ARM) and Exstrophy-Epispadias-Complex (EEC). It will be a unique knowledge resource for future research questions.

Project Leaders

Further Cooperators

Dipl.-Inform. Med. Nadine Zwink
Deutsches Krebsforschungszentrum Heidelberg (DKFZ)
Abt. Klinische Epidemiologie und Alternsforschung
C070, Im Neuenheimer Feld 581, 69120 Heidelberg